things that have actually helped the most

Through all of this I have had three things that have had a big impact in helping me
1. Immunos - cyclosporin not a good thing to be on especially long term and the side effects (skin cancers, liver damage, kidney damage) to name a few shouldn't be taken lightly its definitely a drug to weigh up the pros n cons off before you start but if you are severe and willing try anything id recommend,  you get checked regularly while on them, blood tests etc
They took about 6ish weeks to kick in properly I started on 125mg im now on 75mg and doing so good im going to 50mg

2. 50/50 emollient, I found moisturiser left my skin alot more tearable than the 50/50 did I also melted in in my baths on the days I couldnt have a bleach bath.
This emollient is the only one I have been able to use regularly I started off applying 2/3 times a day and i slathered it on now I use it every other day and only one application and a very thin layer

3. Bleach baths- fab to stop Infection,   half a cup of normal household unscented bleach in a full bath soak for 20 mins then rinse off,  I did this 3 times a week when I was at my worst I now do it once a week purely just as a precaution to stop any type of infection.  If its your child thats suffering I would say try the bath yourself first just so you can see ot doesn't burn or sting
I think the key to this is make sure you rinse off and apply the emollient as soon as you get out this stops any drying effect the bleach can have

sepsis

Ive decided do a lil note on sepsis - the top two pictures were taken in the hospital you can see how swollen my legs had gone I was sat in the hospital garden but had to prop my legs up
www.nhs.uk/conditions/Blood-poisoning/Pages/Introduction.aspx
Copy and paste the link to read up about it, of tsw is giving you the chills id recommend you taking your temp daily as if you begin to get a fever you wont realise
The week leading up to my hospital admission I noticed I went down hill rapidly with my skin, I was in work Wednesday feelin great, by friday I was bad so went docs and was given bath stuff n moisturiser-no vitals where checked,  I was worse sunday so had to phone in sick I thought the new cream had made me worse come monday I phoned docs again she said u dont need to come in ill give you some antihistamines and a week off work, Wednesday night I went bed and slept like I havent for months a deep deep sleep but wierd dreams my partner came home n woke me my bed sheet was covered on brown/yellow ooze I felt awful ive never felt like that in my life, rang docs and was told go straight there I would be seen as soon as I arrived I went in my pjs vitals checked my blood pressure was low, my temperature was very high and my heart beat was rapid, so the hospital was called n ambulance called for that was the beginning of a 13 day hospital stay on iv fluids, iv antibiotics,  anti clotting injections and a steroid injection, I was told I was very lucky the stage I was at a day or 2 later and I could of been beyond help
Here are some pics of how my skin went during that time

For more sepsis info please copy and paste this blog info, sepsis really isnt to be messed with

http://www.survivorsofsepsis.blogspot.ca/?m=1