sepsis

Ive decided do a lil note on sepsis - the top two pictures were taken in the hospital you can see how swollen my legs had gone I was sat in the hospital garden but had to prop my legs up
www.nhs.uk/conditions/Blood-poisoning/Pages/Introduction.aspx
Copy and paste the link to read up about it, of tsw is giving you the chills id recommend you taking your temp daily as if you begin to get a fever you wont realise
The week leading up to my hospital admission I noticed I went down hill rapidly with my skin, I was in work Wednesday feelin great, by friday I was bad so went docs and was given bath stuff n moisturiser-no vitals where checked,  I was worse sunday so had to phone in sick I thought the new cream had made me worse come monday I phoned docs again she said u dont need to come in ill give you some antihistamines and a week off work, Wednesday night I went bed and slept like I havent for months a deep deep sleep but wierd dreams my partner came home n woke me my bed sheet was covered on brown/yellow ooze I felt awful ive never felt like that in my life, rang docs and was told go straight there I would be seen as soon as I arrived I went in my pjs vitals checked my blood pressure was low, my temperature was very high and my heart beat was rapid, so the hospital was called n ambulance called for that was the beginning of a 13 day hospital stay on iv fluids, iv antibiotics,  anti clotting injections and a steroid injection, I was told I was very lucky the stage I was at a day or 2 later and I could of been beyond help
Here are some pics of how my skin went during that time

For more sepsis info please copy and paste this blog info, sepsis really isnt to be messed with

http://www.survivorsofsepsis.blogspot.ca/?m=1

progress pics

The above are In order oldest first left to right 

the face pics are left to right big pics then little

the bottom pics are recent

update

Well I spent 13 days in hospital all together because of the sepsis and needed a further 6 weeks off work then went back on reduced hrs for a week and just about manages but the sepsis has really wiped me out but luckily I had holidays booked so now im off for 2 weeks x
Ive been on the cyclo for a good few weeks now and my skin is wonderful cant believe it iveeven managed to reduce my dose I'm nearly 6 months in now and wondering if maybe this is it for me maybe my tsw journey is over im going try lower the cyclo again soon and see how I go

Im going to do a post in a sec of pics taken during my tsw journey

hospital

If you read my previous post about how awful I felt it will come as no suprise that I deteriorated very quickly, I woke up Thursday morning to find the sheet I was laying on was covered in browny/yellow ooze I got in the bath straight away but felt so ill, I got out n just sat in the bathroom not really able to move, I shouted dave n said I was in a really bad way I think I may need go a+e, I rang round to try get a lift there but then I decided I would ring the docs first c if I could get a home visit, they said a doc would ring me back while waiting for the call I decided call the derms office tell them I was bad anychance I could be seen they said no, the doc rang me back just after 9 I asked for a home visit he said we only do them for house bound patients so I told him I basically was I was in no fit state leave the house, he told me he could do one but not till the afternoon or if I could get there somehow they would see me straight away.
I decided try make it over to the docs as only a 5 min walk away so I donned on my coat over my onzie n put my trainers on dave had rang cal n he came n sat with the kids
Dave helpd me get the docs and I was seen 5 mins later the doc took one look at me and took my blood pressure temperature and pulse and told me he was ringing rhe the hospital to have me admitted then ringing for an ambulance as my temperature ws high blood pressure low and heart beat very fast
I waited in the surgerys side room and first response turned up and took my vitals again n checked me over then the ambulance arrived I was taken in a wheel chair to the ambulanceI was really worried I knew I was bad but didnt think I was that bad, I was taken from the ambulance to the a+e ward and given a bed the docs came over to try take blood n get a candula iv fitted but they couldn't find a vein lots of prodding and 3 docs later they decided to scan for a vein, they managed find one in my arm but it was very thin,
Bloods were taken and an iv put up with antibiotics and fluids they then came and give me an anti clotting needle in the stomach and a steroid injection in the leg,
I was suffering from a severe infection called sepsis and had endema (full body swelling)
I was told that even though I was very poorly I was also very lucky that I got there when I dis as they caught it before it had chance to do unrepearable damage my internal organs
I was then taken up to a propper ward and 10 days later I am still here haha Im off the fluids now and dont need an iv anymore, I also developed herpeticum while in and was put on antivirals which cleared it up fast,
Ive had a skin biopsy done but no results back as of yet, im now on antibiotic tablets, and recently been started on 125mg of cyclosporin as they stopped the azathioprine when I arrived I also take hydroxine and piriton antihistamines and still having the anti clotting injection, my vitals are checked regularly and mosst of the time are normal just an occasional change in blood pressure but my hate rate is still quite high n my feet quite swollen but other than that im doing well n hope to go home soon
I was surprised to find I had lost just over a stone in weight they weighed me here n I was 7st 6 I couldn't believe I had lost that much
I would urge anyone going thru tjis to go the docs if they are feeling bad not everything is just a side effect of tsw and I dread to think if id of listened to the ppl on the forums telling me it was just part of tsw, I could of ended up dead!

immunos n moisturiser

Well im in week 11/12 and my god im in the mother of all flairs im on week 1 of taking a low dose of azathioprine as its just got too much with the kids n work, I was using oilatum plus in the bath n epaderm moisturiser these worked well for nearly two weeks but just changed to dermol bath stuff and dermol moisturiser x ive just finished my second course of antibiotics for a staph infection
Im red raw all over and weeping like crazy especially my legs im back to see the derm in two weeks to hopefully up my dose of azathioprine and maybe I will start to see the benefit
I went docs again yesterday for sleeping pills as the lack of sleep is just awful lying in bed tossing turning and itching non stop is just hell haha
The weight loss is another thing im not liking I now weigh 8 stone and still not got much of an appetite I will b mentioning this when I go back as I don't want to lose anymore x

update x

Not posted in a few days so thought id update, I have been going through a mass shedding stage the amount of skin falling off me is ridiculous,  ive had my derm app thru its on monday I think im going to see about immunosuppressents as this really isnt anyway to live even if it is only for a while, you can still get flairs etc but ppl say they are less severe and that sounds good to me haha
My mood hit an all time low last week too felt really down and had a cry but luckily managed to perk myself up and get back to normal, I had to take a day off work Wednesday too as my skin was literally falling off my face, not a good look to have when working with food x heres some pic updates as you can see im still a mess but the plus side it I seem to get itch attacks then a break on and off now where as before the itch was constant

urgh face!

Well my face continues to be a pain in the arse its so flaky it looks a mess but it looks worse with moisturiser on! So prefer the flakes even though I look a state.
My first day back in work didn't go to well I lasted 3 hours as vomited and felt bloody awful think this was either the antibiotics or the fact that I had done jack crap most of the time I was off on hol so my body got a shock being up and out early!
I was freezing cold too despite the double layers and bodywarmer so ive finally given in and asked to be moved to a non chilled dept so I have 3 shifts left on the deli before I start my new dept yey count down has begun haha!
Got to go and pick my son up from school in a bit and this is the one place I hate going, work doesnt bother me much but walking into that school yard full of 'perfect put together mums' makes me feel hideous and I feel awful for ben that I have to look like this, hopefully by the time he goes seniors in a year an a bit I will look like me again as the senior school years are hard enough with out a mum that looks like an monster haha x hers a pic today of my face as you can see no change really :0(